Representations and perspectives of primary caregivers of children with chronic kidney disease
Introduction: Pediatric chronic kidney disease (CKD) is a serious health problem that affects the life of the adults and generates psychosocial impact on the family network. Objective: To reveal the representations and perspectives of primary caregivers of children with chronic kidney disease. Metho...
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| Other Authors: | , |
| Format: | article |
| Language: | Spanish English |
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2022
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| Online Access: | https://revistas.ucu.edu.uy/index.php/enfermeriacuidadoshumanizados/article/view/2615 https://hdl.handle.net/10895/6305 |
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| Summary: | Introduction: Pediatric chronic kidney disease (CKD) is a serious health problem that affects the life of the adults and generates psychosocial impact on the family network. Objective: To reveal the representations and perspectives of primary caregivers of children with chronic kidney disease. Methodology: Study with phenomenological design administered in 9 informants, collection of information through in-depth interviews, category analysis, triangulation by researcher, safeguarding the rigorous criteria of Guba and Lincoln, and respect for the ethical principles of Ezekiel Emanuel. Results: The meta categories “living the disease”, “highly demanding disease” and “support networks present” emerged. Discussion: Coping with the disease is threatened by physical fatigue, uncertainty, and alteration of support within and outside the family structure. A similar result is found in the base study. The management of the child is carried out by the mother in almost all the activities associated with its treatment. Conclusions: Women provide care invisibly and continuously. It is necessary to make it visible as a social problem, to establish policies with a gender perspective that determine corrections of inequities that cultural stereotypes provide, as well as to make visible the need for greater nursing intervention as support for informal care. |
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